List of previous
medications and
current medications:
PHENOBARBITAL 10/98 - 8/00
DEPAKENE 4/99 - 9/00 Taken off this because liver enzymes went too high.
KLONOPIN 9/00 - 7/03
CARBATROL 10/00- 8/17/05
LAMICTAL 12/01 - 3/03
KEPPRA 12/02- 5/05
DIASTAT AS NEEDED FOR PROLONGED SEIZURES.
Medication updates:
Update Feb. 2003
I CURRENTLY TAKE 9 PILLS IN AM AND 9 IN PM.
Klonopin, Carbatrol, Lamictal, and Keppra
I am such a BIG Girl I take them and dont give Mommy any trouble. The problem is it really makes
me disoriented in the morning. I am very drugged up I vomit, can't hardly walk, sleep, vomit again and this usely last
until about 12:30pm. Many days I cannot attend school or Mommy has to come and get me because I am so sick. In the afternoon
I have a couple hours I enjoy. But then about 4:30pm the seizure activity picks up and gets intense at times the jerks start
then the eye's start to flutter. Most times too many to count. There are times when mommy has to give me diastat to stop the
clustering.
March 2003
Since my hospital stay in Cleveland the doctor decided to only send me home on
Keppra & Carbatrol, He seemed to feel all we were doing is increasing the side effects of the medications. But after just
a few days home we started having troubles with seizures so Klonopin was added again as needed and Keppra was increased to
500mg twice aday.
March 26:
The doctor has now put me back on Klonopin, it really seems to be helping. It has
decreased the amount of Myclonic Jerks alot some days we may only seen one ot two, we ARE PRAYING IT CONTINUES TO WORK.
Oct. 2003
Katie came off Klonopin 7/26/03. She currently remains on Keppra 1000mg a day and Carbatrol
600mg a day. Hopefully the EEG in November will be good and she might get to wean down on some of the dosage.
Oct. 2005:
Katie was taken totally off all meds as of 8/17/05 at this time she continues
to do well. Please pray that those nasty things don't ever come back.
